aHAND4 Life! - Policy, Privacy



Re: VIP! Information (Member & Client, HIPPA Compliance)

aHAND4 Life! necessarily works with our VIP!'s "Protected Health Information (PHI)". We must be provided such to Qualify VIP!'s for Services, and then use such in initial and annual Assessments to determine which Services can be applied, and how, and thereafter throughout case management.

Therefore, our systems are required to be "HIPPA" compliant, and so our systems are designed to be. Firstly, all information is managed on a "need to know" basis. All Staff which may come in contact with such PHI, receive in advance, the necessary training in HIPPA Compliance. As well, we utilize a major, reputable web-hosting provider to securely store our website (https://, etc.) and collected Registrant, Applicant (including VIP!s) data Media Temple, owned by GoDaddy. We also assure provide Secure, offsite, backedup storage by a Service provider which provide such services for some of the leading Medical Hospitals and Medical Centers in the nation (we cannot mention who for security reasons). We have established a roadmap for HIPPA Certification as well.

A number of the provisions below relate to HIPPA compliance, and where applicable aHAND4 Life!implements such to such level of compliance. Where HIPPA compliance is NOT necessary, such as even for "Mission Critical" information, we do NOT implement HIPPA Compliance - though for such we STILL provide a HIGH DEGREE of security measures and precautions, to prevent things as "hacking", "fraud", "theft", and the like - measures we trust our Members and Clients and their families well appreciate in this modern "cyber" world, and their selection out of the many of a valued Service provider as aHAND4 Life!

Re: General Information Use

Website or Mailed In

aHAND4 Life! respects the privacy of our Interested Parties, Members and Clients. We will treat all the information you supply with great care and confidentiality and security. The information aHAND4 Life! requests via the web, is typically only general Personal Information REQUIRED for: 1) General Registration, OR 2) Introduction to the Membership process, so we can determine if we can effectively serve your interest. Such information is generally known by the Public, or as a close friend or Family member would know, but we request it anyway for your Affirmation.

aHAND4 ® Life!'s collects "Web User" or "Nominee" or "Applicant" information, such as submitted through aH4L! websites or mailed to our Corporate Headquarters, ONLY used for the purposes for which it was collected.

aH4L! collects information from users through several points on the web such as making a donation, ordering free materials, signing up for the ahand4life.org discussion boards and online event fundraising. The primary reason for aH4L! to collect personal users' information is to provide personalization options for our web visitors, and to facilitate website features that require user input, whether this information is submitted directly by the site user, or collected by use of technologies such as cookies, as discussed below.

All information submitted electronically or mailed to aHAND4 ® Life!'s, ONCE IN OUR POSSESSION, and thru "Denial" or "Termination", are treated STRICTLY Confidentially, on an internal "need-to-know" basis only, and otherwise treated with our fullest security and confidence. We use secure servers, of modern vintage, so among the latest commercially available and commonly used by small non-profit Organizations's as ours. We also strive for HIPPA-like compliance of any Medical information submitted, which is minimal, to demonstrate compliance with our Policies. Such information IS NEVER released outside aHAND4 ® Life!'s without the expressed written consent of the owner of said inforation.

For any candidates we "Deny" Membership, or Members cancelling or having the Membership Terminated, at any stage along the "Regration", "Application" or Service or Membership process, we PERMANENTLY discard (shred, permanently erase from computers, etc., per HIPPA guidelines) all Registration and Application materials as a matter of policy - THEREFORE WE WILL NO LONGER HAVE ANY record of it, and any FUTURE interactions MUST BEGIN anew.

Financial, including Credit/Debit Card

Personal financial information submitted, and any credit card information (number, expiration date, CVC code, etc), are only collected as required per our Policies to effect the desired "financial transaction" - such as Donation, Membership Dues, etc, whether we process such manually, or via aH4L's! online website. This information is NEVER maintained by aH4L!, and subsequent to transaction processing, is immediately PERMANENTLY discared. All online transactions are securely transmitted using SSL encryption. If the user utilizes our Paypall sub-service, all Paypal Policies apply, and we believe such offered by Paypal are among the latest state of the art in online financial transaction processing. Therefore, IN NO CASE, does aHAND4 ® Life!'s accept any responsibility for any issues encountered by these "third-parties", as we have no control over it. We will, however, upon written request of the financial "donee or member", comply with all reasonable requests for information leading to resolution and answer of questions related to such financial transactions.

Advertising Policy

aH4L! does not host any form of advertising from our websites or email communications.


A cookie is a piece of data stored on the user's computer tied to information about that user. aH4L! uses both session ID cookies and persistent cookies. For the session ID cookie, once users close the browser, the cookie simply terminates. A persistent cookie is a small text file stored on the user's hard drive for an extended period of time. Persistent cookies can be removed by following Internet browser help file directions.

The primary function of cookies for aH4L! is to facilitate use of our websites by our users, and to enrich your online experience with us.

Persistent cookies are used to store the user's registration identification information from their basic registration, to facilitate their logging in to their personalized view of aH4L! websites. Persistent cookies enable us to track and target the interests of our users to enhance their experience on our sites. See the Profile section.

Session cookies remember what chapter you are registered into or visiting online and who you are if you go from one aH4L! website to another in a session. This way we are able to cut down on the number of logins required when you visit various aH4L! websites during any given session.

If users reject cookies, they may still use our sites, and all the informational resources provided through them. Their registration-based personalization options and the capacity of their browser to keep track of what chapter they are visiting online as they go from one of our sites to another, is lost if the user rejects cookies. aH4L! uses a tracking utility provided by a 3rd party vendor to track usage of specific web pages and other resources provided through our website. The vendor sets cookies as a method for compiling site usage information but these cookies are only used to compile demographic models of site usage and are not tied to the user's personal information.

Membership Name/City Disclosure

* Please NOTE, we hold the Name and Identity of all Members in obscurity - unless a Member becomes elected Director, OR the Member signifies in writing their giving level qualifies and they wish to include their Name and/or State in the Champion Recognition listings of Platinum, Gold, Silver or Bronze Contributors. The intent of this Policy is to provide for confidentiality and/or anonimity where possible, or recognition where required (Director), or where desired (otherwise). Recognition helps the Organization grow and attract Membership (all Categories), Leadership and Staff.

Communications from our Website, and the Organization

Financial and Medical Records Requests

aHAND4 ® Life!'s NEVER sends UNSOLICITED Requests for Registration OR Membership Information, without you ALREADY being involved intimately in the process, and without including clearly identifiable information that you are already aware of regarding said process. For online Membership Applications in particular, where some Confidential Information IS requested, we provided secure servers, password control, authentication, and email exchange with you, over a very limited period (typically several hours), for information exchange. We also utilize high bit level (128bit minimum) encryption AND industry norm secure communications technology. You also are required to provide a temporary MEMBERSHIP Application Code confirmed by a Fiduciary Part of our Organization, typically the President, as sent from a secure email address at aHAND4 Life! .org,

Unless you are in the above described "ACTIVE" Membership Application" process

aHAND4 ® Life! NEVER requests SPECIFIC Confidential Information as FINANCIAL OR MEDICAL Records via the Web. This information includes bank account or credit/debit card numbers, social security numbers, employer numbers, specific annual income or Tax Records, your specific medical diagnosis, doctors information or any other of your Patient Records which are Private and protected under the US HIPPA (Health Information and Protection Act). We also DO NOT request Names of Family, Caregivers, Pets, prior Schools or other various highly confidential information which could be used in passwords, etc. NOR do we ever request to ARRANGE DELIVERIES that you are unaware of ahead of time. All of these we arrange with you in direct, secure communication, in writing and with personal phone contact, and typically involving US Mail for completion of formal written contract agreements. We utilize multiple step processess, and controls. If you EVER receive a request for such information, and are unsure of the Origin, PLEASE DO NOT reply! First CONTACT aHAND4 Life! in a trusted manner, or have another trusted Party to assist you in your determination. Please see ADDITIONAL related Policies below (Privacy, Security, Disclaimers, etc.). Registration, Membership & Clientship are performed at the provider's (you) sole discretion.


If a user wishes to opt-in subscribe to our e-newsletter, we ask for contact information required for basic registration to the site, consisting of a working email address, a zip code and a password.

As indicated above, Communications from our site our limited to specific purposes related to your ALREADY initiated Registration or Membership, including easily identifiable information YOU provided immedaitely previously, in that process. This includes any Personal Confidential, Financial, or Medical record information. In each case, we attempt to limit the information to that essential to the process, and defer the remainder to written hardcopy, provided to you via US mail.


Legal Disclaimer

Though aH4L! makes every effort to preserve user privacy, we may need to disclose personal information when required by law wherein we have a good-faith belief that such action is necessary to comply with a current judicial proceeding, a court order or legal process served on our website. aH4L! may need to share personal information with third parties in other limited circumstances. For example, we may release personal information to third parties to perform services on our behalf such as: advising you of our upcoming events, products, partnership offers, volunteer opportunities, and health-related information or processing credit card payments. aH4L! may also make your name and postal address available to other nonprofit organizations whose services or activities may be of interest to you. However, third parties retained by aH4L! to provide such services are obligated to maintain the confidentiality of this information and are not authorized to use this information for any purpose other than providing those services. If you would like to opt-out of having aH4L! share your name and postal address with third party organizations, please email admin@lls.org and type 'do not share' in the subject line of your email.

Third Party Intermediaries

aH4L! uses various 3rd party transaction services to process online donations. aH4L! provides the option of receiving certain of its online booklets, brochures, and fact sheets by mail through request forms on our websites. These materials are shipped by the US Postal Service.

Additional services for Light The Night Incentives, ordering from the aH4L! e-store also utilize 3rd party vendors for ordering, fulfillment and customer service.

We will only provide these companies the information they need to deliver the service and prohibit them from using that information for any other purpose. These companies/organizations do not share or use personally identifiable information that may be obtained from these transactions for any secondary purposes.

Open Forums

Message boards and chat rooms may be available to visitors of the Site. The forums will identify visitors as requested by the visitor. Please remember that any information you disclose in these areas becomes public information. Accordingly, you should always exercise caution when deciding to disclose personal information.

Notification of Changes

If aH4L! changes its privacy policy, changes to this privacy statement will be posted, with prominent links to the new policy positioned on the aH4L! homepage (http://www.ahand4life.org), and other places we deem appropriate, so our users are always aware of what information we collect, how we use it, and under what circumstances, if any, we disclose it. aH4L! will use information in accordance with the privacy policy under which the information was collected.

Our Commitment to Children's Privacy

Protecting the privacy of the very young is especially important. For that reason, we never collect or maintain information on our website from those we actually know are under the age of 13.

The Children's Online Privacy Protection Act (COPPA, see: www.coppa.org) protects the personal information of children under the age of 13. This applies to individually identifiable information about a child that is collected online, such as full name, home address, email address, telephone number or any other information that would allow someone to identify or contact the child. The Act and Rule also cover other types of information--for example, hobbies, interests and information collected through cookies or other types of tracking mechanisms--when they are tied to individually identifiable information. It is important for you to understand this law; we encourage you to read more about COPPA.

Note to Parents on Our Privacy Policy

aH4L! is committed to providing a safe, secure, and fun online experience for children who visit our network of sites. We are dedicated to safeguarding any personal information collected online and to helping parents and children have positive experiences on the Internet. Consistent with the Children's Online Privacy Protection Act of 1998, we will never knowingly request personally identifiable information from anyone under the age of 13 without prior verifiable parental consent. A parent or guardian may revoke their consent and ask that information about their child be deleted from the site by contacting our offices via mail (see: address below) or email info@ahand4life.org. To do this or to review personal information collected from children, we must verify the identity of the requesting parent. When a parent or guardian revokes consent, we will stop collecting, using, or disclosing information from that child. To respect the privacy of parents, information collected and used for the sole purpose of obtaining verifiable parental consent or providing notice is not maintained in retrievable form by the site if parental consent is not obtained after a reasonable time.

Contacting Us

Effective management of our email list to honor the interests of our contacts is a founding principle of our email communications program. Whether you would like to be removed from a specific campaign or eNewsletter offering, all of our communications include an 'unsubscribe' option.

To be removed from our direct mail or telemarketing lists, fill out our Contact Us form and include your request in the 'How can we assist you' field.

If users have questions or concerns regarding this statement, they should first contact us by email at info@ahand4life.org or by postal mail at:

aHAND4 Life! Inc 567 Sutter St., Third Floor San Francisoco, CA 94102 c/o Edward W. LeMahieu, President
Additional Information

This privacy policy is personal between you and us, and no one else shall be deemed a third party beneficiary of this policy.

USE OF THIS SITE SIGNIFIES YOUR AGREEMENT TO THE TERMS OF USE AND THIS PRIVACY POLICY. aH4L! reserves the right to change this policy at any time. Since any changes will be posted on this page, we encourage you to check this page regularly. Your continued use of the Site will constitute your acceptance of such changes. If you have any further questions regarding this privacy policy or the use of your personal information under this privacy policy, you can contact us at the following postal address: aHAND4 Life! Inc 567 Sutter St., Third Floor San Francisoco, CA 94102 c/o Edward W. LeMahieu, President

Security Policy

aHAND4 Life! (aH4L!) goes to great lengths to protect the confidentiality and integrity of all the personal information share with the Organization via the web.

aH4L! treats highly critical data such as credit card and Social Security numbers, as well as your SIGNIN Password as critical assets that must be guarded at all times against loss and unauthorized access, online and off-line. Thus, we utilized advanced, industry-standard computer security encryption (hashing) techniques, which means no human being within aH4L! ever sees such information at any time. As well, our strict internal administrative Policy highly limits the number of employees who have access to even the encrypted data.

Please read our related Policies on "Privacy" and "Disclaimers" (herein). If you have additional questions about our specific web security procedures, please Contact Us with your question(s), and we will reply as promptly as possible with information for your decision-making.

Links Policy

Links by aHAND4 Life!

aHAND4 Life! (aH4L!) does not provide links from its website(s) to external sites except as specified by business or contractual relationships with sponsors/partners and select information providers.

Links by Others

Permission to create a link to any aH4L! Internet Websites or Webpages (the "Sites") is granted upon compliance with the conditions described in this Link Agreement. By creating a link to any of the Sites, you agree to be bound by the terms stated in this Link Agreement. aH4L! reserves the right to change these conditions at any time without prior notice, and compliance with such revised terms is a prerequisite to your continued right to link to the Sites. aH4L! expect persons or organizations that link to the Sites to provide factually correct information and to uphold high ethical standards in developing and presenting information. Permission to link to the Sites is limited to: (i) active volunteers or participants in any event sponsored or benefiting aH4L! or its affiliates; (ii) donors or sponsors with formal affiliations with aH4L! or its affiliates; (iii) recipients of aH4L! grants or sponsorships using language outlined in the funding contracts; (iv) organizations actively and directly participating with aH4L! in serving its charitable beneficiary membership in the activities of its mission as stated throughout aH4L!'s website. This includesin blood cancer research or education or aid to blood cancer survivors or other activities in fulfillment of aH4L! mission; (v) community non-profit organizations serving the needs of blood cancer survivors; or (vi) individuals or organizations that, through the approval of aH4L!, are members of advocacy or grassroots fundraising groups. If you do not fall into any of these categories, you are prohibited from linking to any webpage of aH4L!'s website herein. Please contact aH4L! for expressed written consent prior to linking.

Method of Linking

When linking to the Sites, you may use a text link. You must use hypertext only and it must be in the following form: "aHAND4 Life!®." Any variation without written consent from aH4L! may result in immediate termination of your rights to link to the Sites.

Limitation of Use of aH4L! Logo

Please note that only official sponsors, partners and fundraising participants affiliated with aH4L! who have a written license agreement with aH4L! may use the official aH4L! registered logo (or any other aH4L! trademarks, service marks, logos or slogans) as a link.

Framing or embedded Content is Prohibited

When linking to the Sites, you may not create a frame around the information provided from the Sites, imbed www.ahand4life.org content into your site, or represent it differently in any way other than it is presented on the Sites.

No aH4L! Endorsements permitted, expressed or implied, except by written Agreement

When linking to the Sites, you may not state or imply that aH4L! is endorsing you and/or any of the products or services that you or your organization provides. Additionally, you may not represent that you or your organization has a relationship with aH4L! or any of the events, products or services that aH4L! provides unless that relationship is the subject of a written agreement that has been signed by aH4L!. You must clearly communicate to the public that you are one of the persons or organizations permitted to link (as identified above) by stating that you are a Member with a Significant Physical Disability, a Caregiver member of person of Significant Physical Disability, a Director, Advisory Board member, Sponsor, Donor, Supporter, Partner of aH4L!, etc., as applicable.

Your Acknowledgement

By linking to the Sites, you acknowledge the following:

• Except for sponsor materials or unless otherwise indicated, aH4L! holds the copyright to all materials on the Sites. Further, except for trademarks, service marks and logos of its sponsors, or unless otherwise indicated, aH4L! owns all of the trademarks, service marks and logos ("Marks") used and displayed on the Sites. Without the express written consent of aH4L! , you may not copy, reproduce, display, republish, download, post or otherwise use any of the material or Marks from the Sites on your website or on another website. Any use of the Marks requires a separate agreement with aH4L! and is permitted only subject to, and in accordance with, aH4L! 's standard branding guidelines and quality control and trademark guidelines and license of use of the Marks.

• aH4L! assumes no liability or responsibility whatsoever for any content of any website that is linked to the Sites.

• You agree to hold harmless aH4L! , its officers, directors, employees, volunteers, affiliates and licensors from all claims arising out of or related to your link to, or inability to link to, the Sites. If your link to the Sites results in the need for servicing or repair of equipment or data, you agree to assume any costs thereof.

•aH4L! reserves the right to terminate any links to the Sites, as it deems necessary, with or without cause or warning. If aH4L! chooses to exercise this right, you will be required to remove your link to the Sites immediately.

•You agree to comply at all times with the Terms Of Use posted on the Sites, which are incorporated into this Link Agreement by reference.

Requesting Permissions

Requesting permission to Link

To request to link to aH4L! web content, Contact Us by email.

Requesting Sponsorship, Supportership, or Partnership

To find out how to be an aH4L! Sponsor or Partner, or to request a reciprocal linkage agreement, please email partner@ahand4life.org.

Requesting Copyright permission

To request copyright permission, visit the Copyright section above.